She even called the operator at Hopkins to find out about her "cancer test results," but no one had any clue.Deborah really thought that Hsu was taking blood to find out if she had the same cancer that killed her mother.The NIH had put some guidelines in place, but in the wake of the Tuskegee Institute experiments, regulations about retrieving and using human tissue for research were still being debated.Skloot explains that the best way to provide oversight in scientific research had not been decided yet.And what about informed consent? Day didn't seem to understand what was truly going on, and Hsu never had him sign any forms because it was just a blood draw.Hsu seemed to think that the Lackses understood all about Henrietta's cells and how they were used.There was, however, a whole lotta miscommunication because of clashing versions of English. But apparently Hsu said no such thing (there is no "cancer test").Day later tells Skloot that Hsu explained that the blood was for a "cancer test" to see if the children had cancer like their mother.She wasn't told to explain anything to them. Hsu called Day and asked to draw blood.Or rather, he volunteered his barely English-speaking postdoctoral fellow, Susan Hsu. Victor McKusick, a Hopkins geneticist, volunteered to get blood from the Lacks family.They figured the best way to do this was to get some blood from Henrietta's living relatives so that they could properly identify HeLa in cultures by mapping her genes.Around the same time, researchers who were trying to map the human genome wanted to untangle the HeLa contamination problem. ![]()
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